An enhanced quality of life for people and their families living with persistent pain through self-management programs and peer support.
People in Pain Network is a non-profit organization that promotes well-being for people living with persistent pain and those who care about them, by strengthening self-management programs, access to resources, and community support.
How do we do this?
People in Network was founded in 2011 to help bridge gaps in pain self management and with peer support. Our board members bring years of experience to the table (75% of our board members are living with pain), and have been involved in the professional pain community for over 24 years. Board members have represented people living with pain in the development of pain education and pain self management programs. Recently, we have been included on committees for the development of content for training healthcare providers to provide pain management services for people living with pain across British Columbia. We are now a registered Charity effective November 2016 We partner with and link resources with:
BC Children’s Hospital Complex Pain Service
Women's Chronic Complex Disease Clinic Vancouver
Integrated Health Networks
Patient as Partners, Patient Voices Network
Since our inception we have built an informative and interactive web site that connects people to information, education, resources and support. Provides information on each support group including location, day, time, transportation options etc. We are more than just a support group, we are PSMES (pain self-management education and support) groups. Our PSMES groups use our adult or youth Canadian Pain Toolkit self management program to form the basis of the educational segments of the meetings. The group members use brief action planning and SMART goal setting to build their "new normal". The topics at the meetings are collectively decided by the group members and health care providers from the community are invited to come and share their expertise.
About - People in Pain Network People in Pain Network is a non-profit society registered in British Columbia in 2011. We became a registered charity in November 2016. We began our efforts in British Columbia primarily because the health care system has made a great beginning with many initiatives now in place to continue the improvement of pain education, pain management and pain self-management.
There continues to be considerable work undertaken by the BC Ministry of Health and the Doctors of BC to improve the level of care for people living with persistent pain with a number of professional led educational events. Unfortunately, these events only address some of the needs of people living with persistent pain leaving them alone to find their way through the minefield of available options and treatments. These services are often fragmented, have long wait-lists or cost more than a person living on a disability pension can afford. The People in Pain Network has stepped up by providing peer-led self-management support groups to address the ongoing education and needs of people living with persistent pain. If a patient sees their healthcare provider for 20 minutes once a month the remaining 43,180 minutes are theirs to self-manage. Typically they use the local hospital emergency services or a walk in clinic. This process can leave the person feeling isolated, scared, lost, without motivation, and certainly reduce a person’s self-worth. About the People in Pain Network as an Organization
Heather Divine, a person, living with pain, is the founding CEO of People in Pain Network. We are a registered non-profit society founded in 2011 by people living with pain for people living with pain and all those who care about them. In British Columbia, there is approximately 800,000 adults plus approximately 120,000 children and youth who live with pain in British Columbia.I have been living with pain for the past 25 years and had to leave my job as an operating room nurse in 1991. Since that time, I have been representing and helping people living with pain in Alberta and British Columbia. Our vision is to an enhanced quality of life for people and their families living with persistent pain through self-management programs and peer support.
We support our vision with the following goals
Development of community-based peer-led PSMES (pain self-management education and support) groups for people living with persistent pain and those who care about and support them.
Pain self-management education.
Canadian Pain ToolKit for Adults and Youths.
Development of a Pain ToolKit Handbook for peer group leaders.
Discovery Journal to identify what's works for individuals with persistent pain.
Developing individuals ability to take positive action to improve the quality of their lives by moving to a new normal.
Place to stay connected.
Support for families and friends.
Safe place to meet and share experiences, struggles and solutions
Reduce the isolation experienced by many individuals with persistent pain.
Community-based healthcare services.
Community-based self-management resources.
Trained peer leaders
Monthly one on one meetings to plan and balance education and support using video conferencing technology. Partner with other organizations to share resources.
Develop partnerships and work collaboratively with healthcare and community partners to share resources and expertise.
Connecting people with persistent pain to community-based resources. Establish the peer-led support groups in partnership with healthcare and community partners.
Align with the Ministry led initiatives to support chronic disease self-management.
Individuals and families develop and practice self-management skills.
Individuals and families increase level of commitment to engaging pain self-management techniques.
Individuals and families develop increased levels of knowledge of their role as daily self-managers or as a support team member.
Anticipated outcomes for individuals and families
Increased confidence to self-manage their condition and an improved quality of life.
Change the perceptions and negative stigma around persistent pain for individuals and families.
Engage both individuals and families in learning and practicing pain self-management.
Provide an improved pain education and pain self-management skills for individuals and families.
Improved levels of commitment to pain self-management.
More confidence to build and lead a support team or to be a support team member.
Anticipated outcomes for healthcare providers
Individuals and families have more knowledge and confidence to work with their healthcare professional.
Individuals and families engaged in their healthcare management process.
Have knowledge and skills to guide patients in the development of their self-management plans.
I continue to represent people living with pain with the following initiatives and organizations.
Founding member of Pain BC, (past board member)
We represent the patient with Patients as Partners/Patient Voices Network.
Participant in the first Chronic Pain self-management Program, (CPSMP) offered by the UVic Chronic Disease Self-Management Program (CDSMP) and completed the leadership training to co-lead the CPSMP program.
Invited to work with the Practice Support Program in January 2013 to assist in the development of content for the Train the Trainer program for community-based pain management services across British Columbia.
Able to represent people living with pain and help develop the most effective content possible for this initiative. On December 5, 2013 I was proud to open the first “train the trainer” workshop attended by about 300 health care providers, with “My Experience of Living with Pain”. I was able to explain that it is more than just the pain - it is about the experience of living with pain that people need help to self-manage. After all, if a person living with pain sees their health care provider for 20 minutes a month, the remaining 43,180 minutes every month are theirs to self-manage. People need help to adjust their body, mind, spirit and environment to get out of the pain cycle and build their “new normal” with a focus on wellness.Our Board
Presently consists of six members including a Clinical Psychologist, Media Specialist, Nurse, Counsellor, Writer and a Director of Operations. Five of the six current board members have persistent pain, ensuring that we place the needs of the people with persistent pain first and foremost in our decisions. People in Pain Network’s Strategic Plans People in Pain Network is a non-profit organization that promotes well-being for people living with persistent pain and those who care about them, by strengthening self-management programs, access to resources, and community support. Our main strategic initiative revolves around the establishment, sustainability and management of community-based peer-led self-management / support groups. Establishment of local community peer-led pain self- management support groups. We offer more than just a support group.
Our PSMES group meetings structure is on the development of pain self-management skills.
Designed to move the support group members from a pain focused life to building persons new normal based on movement and wellness.
Our meeting guidelines and format allow people to share both the struggles and solutions with others who understand.
Help members build and lead their support teams.
Health care providers from the community are invited as speakers at the support group meetings to bring education on an aspect of pain self-management.
Provide the Canadian Pain Toolkit Self-Management Program for all our members.
Enhancing the Capacity of our PSMES Groups
To increase the effectiveness of our PSMES groups, we provide annual two-day workshops for our support group leaders.
Hold orientation and monthly one on one training and planning meetings through video conferencing, for our growing network of peer leaders.
We provide printed material for our peer leaders to take into their healthcare community. This distribution of the information is to let health care providers and other organizations know about the work we do.
We partner with other organizations to share resources.
Canadian Pain ToolKit
Our organization owns the rights to the adult and youth Canadian Pain Toolkit Self-management Program, which forms the basis of the educational segments of our PSMES group meetings.
Our Pain Toolkit “tools” are similar to the Stanford model for pain self-management programs. Our support group members stay connected to education and support for as long as they feel they need to. We have added two new tools to the original 12, #13 Families and # 14 Giving Back. #13 Families - is for the education and support of this important group of people, and #14 Giving Back where people living with pain can add meaning and purpose back into their lives. Growth of People in Pain Network Over the past three years we have experienced an increase in the number of peer-led pain self-management support groups:
2012 we operated two support groups
2013 the number of operating support groups grew to 10.
By mid-2014, the number of operating support groups has grown to 19 in British Columbia including:
Youth support group
Men's support group
Starting in October 2014 a Women’s support group.
Continue to hold yearly strategic planning workshops for board members’ to ensure that People in Pain Network is “on track” with our strategic plans. Next Steps:
We will be hosting online video conference based PSMES meetings for people living with pain who are isolated either by distance, finances or disability. We are developing a peer leaders manual and educational videos to enhance the orientation and training for new peer leaders. We will soon be launching our electronic Self Discovery Journal where people living with pain can enter the information that helps them to discover what works for them and how to plan for and replicate the good days. We are also about to launch the workbooks that accompany the Pain Toolkit Self-Management Program. Community-based Self-management Programs.
People in Pain Network’s vision and mission and the work we do at the community level reflects the values that the British Columbia Healthcare Service places on self-management of chronic diseases and community-based programs.The British Columbia Ministry of Health actively supports self-management for chronic health conditions. To date, their efforts are focused on the delivery of evidence-based self-management programs for persons with chronic health conditions and training in self-management support strategies for health professionals. The work that we are doing with community-based peer-led PSMES groups, our self-management programs, and the education and support of the families of people living with pain. Is supported by the 68-page document entitled “Self-Management Support: A Health Care Intervention” released by the BC Ministry of Health on June 10th, 2011.We believe in partnering with other organizations and sharing resources. Presently we are building partnerships with the talented people in following regionsIf you have any questions, please contact Heather at firstname.lastname@example.org